Re: the Aug. 9 article "Fundraiser helps nonprofit spotlight battle against ALS."
Thank you so much for highlighting the disease of Amyotrophic Lateral Sclerosis and the difficulty of being a caregiver for a person with ALS.
I took care of my husband who became paralyzed, muscle by muscle, over a period of months and died 16 months after diagnosis. My husband also suffered from Frontal Temporal Dementia; it wasn't in the article but severe cognitive changes occur in about 10 percent of those diagnosed with ALS.
I will always appreciate that the very first article I ever read about ALS was published in the Star in August 2014. The Arizona chapter of the ALS Association is an organization worthy of the support of our community. Much compassion and help was provided by Pete Hughes, the Southern Arizona services coordinator, to both my husband and I.
Dr. Miki Paul
Northwest side
